Tell your story of living with chronic pain, by leaving a reply at the bottom of the page. Do not mention specific medications or dosages. Stories do not appear right away.
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Tell your story of living with chronic pain, by leaving a reply at the bottom of the page. Do not mention specific medications or dosages. Stories do not appear right away.
I have physical and mental pain, it has ran off my family and my friends and because of pain I have not been in a relationship for at least 25 years now … the World is a Bad Place to me. There’s not even (1) one person that cares enough to even try to understand what I’m going through! Every day I’m in pain and Sick (EVERYDAY AFTER DAY) EVEN MY DOCTOR. She don’t care or will help me, and do not know why she won’t! Because of all the scammers I am using my internet name: Red Money I am needing money help but no loan, I do not have the money to pay it back.
March 19 2020 I had a car accident that crushed a vertebrae, had Vebro plastic, that was hell! For those that don’t know, they beat a 3-foot needle through your body with a rubber mallet, WHILE YOU’RE AWAKE! and pump cement into the vertebrae. Well the weight of the cement crushed the vertebrae underneath. Went to hospital in SEVERE PAIN ONLY TO BE ACCUSED OF BEING A DRUG SEEKER – NO HELP!
I have nine bulging discs, two crushed vertebrae, pinched sciatica, no cartilage between some vertebrae, I can barely walk some days and GET NO HELP FROM ANYONE. I love life and try to live to the fullest. Damn hard when you can’t move or get relief. TY for listening. Hoping for help!
I was taking a patch every two days, and oxycodone for breakthrough pain at the same dose for 25-plus years. Never failed a drug test, never asked for more meds, did pill and patch counts when they called. I was able to walk sometimes with a cane, go places, see my grandson. My doctor was forced to cut my meds by 90 percent. Two weeks later I was in a wheelchair. Pain levels went up by 5-6 to 9-10. My wife has to wipe me in portable toilet next to my lift chair. I have serious problems and have had over forty surgeries. Permanent nerve root damage. I don’t have a life. Please help me.
I don’t really know where to start… Before any official diagnosis, when I didn’t know what was happening to my body, I was repeatedly humiliated, rejected, flagged a drug seeker and so much more…
4+ years before DC of Lyme
4+ years before detection and removal of Massive Thymus Hyperplasia which grew around my heart causing constriction
1+ years, spinal compression, surgery, cage L5-S1
– Arachnoiditis
– Cervical Stenosis
– Periformis Syndrome
Due to continuous, repeated, horrific, (ER especially), hospital related experiences, my anxiety, major depressive Dx, PTSD, chronic migraines, and seizures have been in a constant state of fight/flight … but I can hardly move so either is out of the question. I am tired. It would be nice to have an advocate. I think it’s too late for me but I’m hopeful you can be one for others before they go through the repeated abuse on behalf of physicians who seem to think they are in a different profession – one of judge and jury. Thank you for your time
I’m 65 years old and guess I will have to live out my life in serious pain. When doing a pre-op to get a total knee replacement they found a heart issue next – day I had open heart surgery to replace a valve. Five years later my second open heart to replace a valve and reconstruct another valve. I have arrested 15 times (I have an implanted defibrillator). Now because of heart, no knee replacement. My knees hurt so bad I can’t walk. I saw a pain doc for years but family made me stop. I have lost all my independence and live with my daughter’s family. The most my doc will prescribe is Tram which doesn’t work.
When I had my first MRI my doctor told me it was a textbook case of the worst kind. I asked him does that mean I will be in terrible pain for the rest of my life or will I not be able to walk. His response was, probably both.
I have been to seven excellent surgeons, all of them telling me never to let anyone talk me into surgery. The chances of it helping me were slim to none and most likely would make me worse. I was able to do physical therapy with the use of pain medication. I was on them for 15 years with no problems. I never asked the doctor for more medication after we were able to get a good dose for me. My doctor would ask me if I needed an increase, but I told him if the amount I was taking didn’t work that day I would wait and see if I was better in the next day or two. In my case taking more didn’t really help. Then all of a sudden pain medications are bad and we all need to suffer.
I started taking Tylenol, that screwed my liver. Then I took Ibuprofen and that hurt my kidneys. I guess they think as long as the doctors cover their behinds that’s all that matters. I’m in my late sixties now and more miserable with pain. I guess they forgot to tell us what was in store for our golden years. Keep positive and keep up the fight.
I have been diagnosed with a herniated disk, arthritis, migraines, and fibromyalgia. I was on some medications for years that didn’t help. I was told that I could not get anything other than what I was taking. I was standing on my feet for nine hours a day. By the time I got off work I could barely move. I stayed out of work or left early because of pain. I lost my job because of this.
I go to one of my doctor visits and she tells me she is referring me to a pain clinic. I tried to call and set up a appointment. I didn’t get a answer so I left a message for them to call me back. No call back. I kept trying and would not receive a answer to my phone calls. I go to another doctor appointment and was told they would no longer give me the pain medicine I was on. I had been on this medication for over ten years. So I had to quit cold turkey. I went through terrible withdrawals. All this I did alone.
I am currently suffering with no pain medicine at all except for over the counter medicine. I am living a terrible life. Simple things like housework makes me hurt. I have trouble sleeping. But what can I do? I cannot get any help. I feel like they think I am lying about my pain. As I am writing this I am swollen and I have sharp stabbing pain shooting through my legs and back.
My wonderful pain doc of 15 years was arrested and I have been unable to find anyone who will treat me in almost three years!!! I am tired of being seen as just another drug addict. I have a complicated medical history, and pain from several disabling conditions. I also have CFS/ME, fibromyalgia, polymyalgia rheumatica, back and neck degenerated discs, etc etc. I am losing hope as I see my future with my conditions worsening and getting no real help!
In horrible pain, have bad scoliosis and all five of my lumbar discs are blown out. Been to many surgeons. All I got was lies and runaround, MRI’s, X-Ray’s, epidurals. Was on Percocet but my nerves were so bad I had to get off and get a nerve med before I went absolutely crazy. They won’t let you take both so I’m at end of rope on couch most of the day, having trouble walking, can’t do much at all. Something has to change with the health system before there is a suicide crisis outweighing the opioid crisis that us in real pain should not be punished for. I guess I will never be helped unless the law changes. Animals are treated better. God bless you all that are dealing with the same suffering. Please someone help us. T.Y.
Very frustrating and shameful what’s going on. I’ve personally witnessed three occasions where patients have been treated inhumanely, myself included.
My husband is a retired military vet and has a host of medical issues. Recently he developed an internal staph infection. Without going into too much detail, he’s currently a hemodialysis patient and it’s believed that’s how the infection entered his bloodstream. He had to be admitted to the hospital, a VA hospital. The infection was in his left arm so they had to open his arm in two spots which left lots of stitches and a gaping wound above his shoulder that had to be cleaned out twice a day. it was extremely painful and the person cleaning the site didn’t seem to care – had him crying out in pain. At first they would only offer Tylenol for the pain, which of course did nothing. He asked the doctor for something stronger and we heard the doctor and nurse arguing outside his room door about the pain medication, which was OxyContin – why?
I have a sister who suffers from Rheumatoid Arthritis. It’s a very stubborn form we both have. For some reason, her doctors stopped prescribing her any pain medication along with inadequate treatment for her RA which caused her to become bed-ridden. She now needs surgery on her knee, her fingers and toes look like pretzels, and she has developed blood clots in her lungs, another painful condition due to inactivity, but still nothing for her pain. I listen to her complaints almost daily but my hands are tied. They just don’t get it, or just don’t care. It’s so much better in the long run for everyone to have people being productive, not laying around in pain, living off the system if not necessary.
I have RA and fibromyalgia. I was diagnosed in 2006. I’ve been on Tramadol for most of that time. Let me tell you, when I first started taking it I was told it was a safer alternative to opioids and was non addictive. My how things have changed. Fortunately for me, my treatment plan, which consisted of treatment for RA and Tramadol for pain has kept my symptoms under control, and I’ve been able to get around a lot better. But recently without warning my dosage of Tramadol was cut tremendously. When the doctor told me she was cutting my dosage I asked if she could taper me down to where she wanted me to be, because I knew what was coming. The answers was, “I can’t do that.” If only they could feel the pain, if only they knew what it was like to suffer from those horrible withdrawal symptoms. As someone else said, as of now I’m still taking the pain med, but I feel it’s only a matter of time before I’m taken completely off – very scary.