Tell your story of living with chronic pain, by leaving a reply at the bottom of the page. Do not mention specific medications or dosages. Stories do not appear right away.
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Tell your story of living with chronic pain, by leaving a reply at the bottom of the page. Do not mention specific medications or dosages. Stories do not appear right away.
My story starts in 1996 while working as a bricklayer and stonemason. I had a fall and broke my back in three places. I wouldn’t want to have two surgeries in the next two years, six screws, two rods, three cages around the front of the vertebrae. I’ve been seeing the same pain management doctor since 1996. I don’t need to be told Peter and a half ago and now I have to be down to certain dosage of medication. So I was gradually weaned down to the dosage that they say is the guidelines. Me doctor realized I was struggling with this little bit of pain medication and put me back on all my pain medication. But then my doctor disappeared. I have no idea what happened to him. We were told nothing, and once again I’m being weaned down off of my medication. Going to be told this time they believe that I would be better off on Suboxone which could not be further from the truth. How can you treat a human like this? We’ve been married 43 years, two kids, one son dealing now stage 4 testicular cancer. I was told no Xanax, I was taken off of that. I had to make a choice either take the Xanax for anxiety or pain medication for the pain. So my case it was a no-brainer pain medication. With what’s going on with my son I could really use a Xanax every once in awhile. I’m not ashamed to say after seeing article after article about what was going on with pain management I called my local newspaper and talked to a reporter. He said Mr Rini I’ve had plenty of people call but nobody wants to put their name out there for everybody to know. I said I will, I don’t have anything to hide. I was interviewed for two hours. I have a reporter in my home only thing story was published. I’m so frustrated, my family depends on me being around the house and doing what I can. I don’t know what to do. Thank you yours truly Michael O.Rini
In the last two years I have broken my femur in the same place twice, last time was two weeks ago. I was cut off pain meds so take Tylenol. I wish this pain on no one!
I have been dealing with severe chronic pain for well over 20 years with no known cause or diagnosis, until August 2018 in which I was diagnosed with Crohn’s disease. I have tried every OTC medication I can think of with no relief. Doctors, hospitals, urgent care centers have refused to treat my pain. I suffer on a daily basis and I feel like I am not cared about. I would love to rally with others in hopes that we all will get the help that we need and deserve.
I have broken my neck in 1997. I have diabetes,gout,. My pain is unbearable my pain management Dr will not sribe me the meds I need. He says all he will give me is not what I need. I’m not one that abuses narcotics but I do need them. They have no answer for my arthritis. I just suffering in silence it’s not right
I had back surgery in 2006. I had a disc crumble and fall on top of another disc and it was pinching a nerve. Unfortunately I have degenerative disc disease. I have screws in my back and I suffer with back pain daily. My life is not the same anymore. I am prescribe a narcotic pain medicine for my pain and I am so tired of hearing of all the people that abuse it and how I could lose my pain meds because of them. I’m not addicted to my pain meds and I could do without them as far as not being addicted but Not without due to my pain. Enough is enough. Treat me like the mature, responsible human I am and Not like those that are or got hooked.
I have multiple chronic pains that were managed with medications since the crisis caused Drs to pull medications back I don’t have a life, I’m lucky to get out of bed and eat. Why do I pay for someone’s lack of control. why not apply this to alcohol too another substance regularly abused that causes deaths the same case could be made for guns.
Recently it’s gotten I can barely function I don’t leave the house talking hurts eating hurts moving hurts sitting up hurts i can’t do anything without feeling atleast one pain sleeping hurts but atleast I don’t realize how much because I’m asleep.
I can barely walk because of disc degeneration snuck into an old car accident spot, but I also have it in my upper back and neck, I am diabetic type 2 but do not have pins n needles pain, I do have a nerve in my hip that causes pain, I looked anorexic and now fat I am not giving up when you have chronic pain it never goes away it’s there for life and the pain does not get better but with proper use of pain killers they take the edge off and you can feel like a somewhat normal person
My last two years of work found me in chronic pain due to many mishaps from childhood on that caused trauma to my spine. Somehow I made it to full retirement although I knew I was a fraction of the productive worker I once was. I had a surgery to save me from paralysis and give relief to some of the pain now knowing my full spine was diseased and damaged. A neurologist prescribed pain medication for me and such relief was found because I had forgotten what it was like to be out of pain that ranged from level 4-9 depending on how much I moved. I took only 25% of the prescribed dosage due to finding how long and well this lower dose medium grade medication worked for me and I was able to skip days taking the medication if I had little activity prior.
Fast forward 17 years. After 17 years of great success with medication that enabled me to remain active I was informed my medication would no longer be prescribed by a new clinic I visited since my neurologist doctor had retired. I was informed by another local clinic that the medication was no longer prescribed except for cancer patients. I have known several cancer victims who got better and never took pain medications. My condition is degenerative and I will never recover from it. I panicked at first knowing my pain will return and life is about to change in a big way.
Due to the lack of access to proper medication I now spend most hours of days in a bed..all day and all night. Walking is so painful I limit it to about 30 yards. Self care has been so neglected it is frightening. I have witnessed through the media how government and the medical community have robbed me of a quality of life because of the actions of others. I consider what has been done to remove access to medication to those who need it so desperately as one of the most sadistic chapters in medical history. I can only wonder who it is and how they feel in their conscience that has done this withholding of relief to chronic pain victims. Do they sleep well knowing the pain and suffering they have caused in mass?
Depression, anxiety, and pain walk hand in hand and feed each other. I call it the pain monster that lives within me. It takes over mind, body, and soul. I beg for mercy on deaf ears.
I’ve had two fuse disc, and at least five back surgeries. I have limited use of my right leg now due to nerve damage. I can walk but it hurts, that’s where the pain pills help. I actually can take half a pill most of the time, but there are times when I need a stronger dose. My Pain doctor refused anything stronger and told me I was not allowed to take anything stronger. So next time the pain was severe I took a leftover pill from my surgery. So my Dr dropped me after a piss test, said he was not going to get in trouble with DEA. But he never would ever give me something stronger for those few times it was needed, so what was I had to do. I was blessed with another Dr who gives me my original pills, but will not give anything stronger also for fear of getting in trouble. Not good for those who are really hurting and only take what is needed.
I’ve been living with CRPS for almost 7 years now. First the Navy refused to accept that my pain wasn’t “all in my head”. Once they realized that sending me to a shrink wasn’t gonna fix it, they sent me on my merry way to deal with the VA. They also refused to see my pain and after a long battle to see outside care, I got my diagnosis from the first doctor I saw. Then the VA forced me through all these pain meds not meant for my condition so they be ok with approving my actual treatment. I’m scheduled to have a device implanted into my spine to control my pain, because the original injury was never treated correctly.
If we want to correct the problem with not being treated for the pain we have, we need doctors to accept that we are in pain in the first place. Many of these doctors say they understand, but until you have experienced what it’s like to be in pain, 24/7, without anything to make it better, day in and day out, people leaving you because they don’t like your “negativity”, then they will not understand why we seek relief so fervently!
I don’t know about the rest of you, but I just want to be able to give my 3 and 4 year old sons a hug without cringing in pain, be able to run with them after never being able to, to have the patience I want to have with them. My pain gets in the way of me being the mom I want to be. I just wish my doctors had paid attention years ago.