Share Your Pain Story

999 Replies to “Share Your Pain Story”

1. My disease and my pain will not kill me…. nor will it let me live.
   A horrifying purgatory is my day to day life. Without real symptom management – I fear I would have no choice but go end my life. It’s the last thing I want to do … I want life I’d only my meds will allow this.

2. I am a 42 year old male that works fulltime, play music, and was a pro skater. I have been a successful severe chronic pain patient for 17 years. This past year I have had pain meds cut in half and now all I can do is go to work and come home. Just when I thought of having a family and a quality of life and things were going really well, the changes in prescribing came out shattering relationships. I will not have a family because my condition will get worse and I would be setting my family up for failure. So I have had to be honest with people I love and now feel unstable with these new rules. I don’t know what to do and am trying to stay positive. I read and am trying to find a way through this mess. The artificial medications have awful side effects, and have tried them all and they make me sick inside with migraines or severe nausea.
   The more natural the better. Can we vote to grow or legalize all plants so that real natural plants can be used to treat all suffer’s . It’s in the 1st chapter of the Bible that we were given all seed bearing plants to use. Now what is wrong with the Bible.

3. I became a slave to crippling chronic neuropathic pain in 2007. On my own I reduced CDC controlled substance pain meds to x0mg methadone & x00mg Lyrica. Realizing I didn’t have a refill on a Thursday after taking last remaining meds, I urgently contacted my doctor for an emergency appointment, but was told they couldn’t see me until the following week and suggested I go to ER. Next day pain returned with a vengence. Following day was agonisingly overwhelmed with the addition of severe withdrawals. During 2 weekend visits to ER, I received humiliating degradation, scrutiny & accusations of being a drug seeking addict. Both times only given single dose & they referred me to a methadone clinic. After hours of waiting in line, intake advised they couldn’t help since I was a pain managed chronic pain patient & wasn’t catorgorized as an addict! By now symptoms included near black out episodes from pain, seizures, muscle spasms & collapsing several times from pain & inability to walk. Visited pain Dr on Monday after sleeping over night in their parking lot, still refused to grant me an emergency appointment. That evening, a neighbor who is being treated for cancer, found me collapsed in my front yard & compassionately gave me 2 OxyContin. On Tuesday Dr office called to finally me. During call I informed secretary of the OxyContin. At appointment I advised of everything that I went thru & that they’d find the oxy in my urine. After a humiliating & pleading interrogation, they coldly decided to refuse me further treatment & escorted me out. Essentially abandoning me without any referral. Only proving a prescription for withdrawals. After days at home near bedridden, exhausted from pain & in despair I gathered personal asset papers, my Will, took out my 9mm and wrote my suicide note. Miraculously that evening members of my support group were able to secure several tablets of 10mg methadone. Essentially saving my life! I later secured replacement pain management who subjected me to an excessive inquisition but still agreed to treat me. When I presented my 3rd methadone prescription to the pharmacy, they refused to fill it! Days after I filed a formal complaint, the pharmacy apologized & reversed that decision and has filled my prescription. My nightmare unfortunately hasn’t ended since last week I learned that my new pain Dr. has 14 malpractice cases pending, which undoubtedly will soon result in revocation of his license. I am presently embarking on finding another pain management replacement. However others I know through the National Pain Report Just brought my attention to Palliative Care Certification. I by all accounts meet all the criteria to obtain Palliative Care Status, which I presented to my primary care. PCS would exempt me from the constant anxiety & threats imposed by the CDC Guidelines!! I’ve been tortured by doctors, hospitals & pharmacies all due to the misinterpretation, paranoia, ignorance & impact of the CDC. This would end with PCS. Even though my pain management is somewhat stable, I still unfortunately feel that I may be revisiting the option of my 9mm. I dread the thought of a returning experience of consuming pain & horrific withdrawals. Being vulnerable to the CDC Guidelines makes that thought a real possibility. I am hoping against hope, pray and wish to be granted PCS. Obtaining PCS could help thousands. Long gone is my confidence of ever feeling safe and receiving compassionate treatment from doctors, hospitals, pharmacies, CDC, FDA & the DEA. I’ve become experienced in horrific battles with them all. While I’m alive, I want to do my part to help reducing the victimisation of all innocent chronic pain sufferers.

4. THE LIFE I ONCE KNEW IS NOW GONE, SINCE MY PAIN MEDS WERE TAKEN AWAY. I SUFFER IN PAIN, EVERY MINUTE, OF EVERY DAY. I AM USELESS, AND I NOW IM A BURDEN TO MY FAMILY. WHY AM I BEING PUNISHED? WHAT DID I DO WRONG? HOW CAN THIS BE? I AM ONLY ONE, OF MILLIONS WHO SUFFER FROM CHRONIC PAIN, THAT ARE LIVING IN A HORRIBLE NIGHTMARE. I HAVE NEVER GOTTEN HIGH FROM MY PAIN MEDICATION, I HAVE NEVER LET MY PAIN MEDS GET INTO THE WRONG HANDS. I TOOK MY “LEGAL PAIN MEDICINE” RESPONSIBLY. MY PAIN MEDICINE WAS NOT “HEROIN ” NOR WAS IT “ILLICIT FENTYNAL.” IT WAS MY “”PAIN MEDICINE, THAT LET ME LIVE””!!! . IT LET ME SHOWER..IT LET ME GO FOOD SHOPPING…IT LET ME KEEP A DECENT HOME..IT LET ME EAT..IT LET ME SLEEP ..MOST OF ALL…IT LET ME ENJOY TIME SPENT WITH MY GRANDCHILDREN , FRIENDS AND FAMILY. THE SIMPLE THINGS IN LIFE, THAT SOME PEOPLE MAY TAKE FOR GRANTED. “I WAS HUMAN”,, ,NOW I AM A BEDRIDDEN, EMPTY SHELL,, ,MY LIFE IS FILLED WITH NOTHING BUT PAIN..WHAT A MISREBLE EXISTANCE…WHY AM I HERE?? WHY WAS I SENTENCED TO LIVE A LIFE IN CHRONIC PAIN?? WHO DECIDED THIS?? DOES ANYONE CARE?? PLEASE , PLEASE HELP THE CHRONIC PAIN PATIENTS. WE ARE NOT DRUG SEEKERS..WE ARE MOTHERS, FATHERS, GRANDPARENTS..SONS AND DAUGHTERS, WHO HAD A NORMAL LIFE..,,,UNTIL AN ACCIDENT OR ILLNESS HAD STOLEN OUR HEALTH,,, BY NO FAULT OF OUR OWN ..WE ARE YOUR TEACHERS, CROSSING GUARDS, WAITERS, WAITRESSES, POLICE OFFICERS…BUSINESS OWNERS..ECT…..WHO HAVE HAD OUR DOCTORS TURN THEIR BACKS ON US, BECAUSE THE CDC HAS LABELED US “ADDICTS” . WE NEED OUR PAIN MEDS , SO WE CAN LEAD A NORMAL, PRODUCTIVE, LIFE..A BASIC LIFE, FREE FROM PAIN. PLEASE HELP. IM BEGGING YOU. I CANNOT GO ON LIKE THIS MUCH LONGER. MY MEDICINE IS OUT THERE, PLEASE LET ME HAVE IT ..IM GOING TO DIE, AND I DONT WANT THAT.. BUT I HAVE TO WONDER,.. I’LL BE BETTER OFF., AND THE PAIN WOULD END… YOU OR A LOVED ONE, COULD BE NEXT. YOUR ONLY ONE ACCIDENT, ILLNESS OR SURGERY AWAY FROM BECOMING “‘LIKE ME”””

5. My name is Tynnetta Jackson
   I have live with chronic pain since I was about 11years old. I was told it was cramps, then endimetriosis, and now I have been diagnosed with fibromyalgia and chronic pain . I am now 53yrs od and cannot hold a job because the pain is so bad I cannot get out of bed with pain medicines.

   I have gone to the Mayo Clinic in Minnesota for assistance and still no help. I am have been going to pain management clinic to another. NO help and no one cares or understands its time for chronic sufferers to be heard.

6. In 2013 I suffered an onset of back pain. I could not walk, sleep or eat. Was diagnosed with a thinning spine and misplaced disk. There is no operating to fix it. I can lay flat on my back and that eases the pain for a short time. If it wasnt for pain medication I would be in a wheelchair. If it wasn’t for my pain management Dr. I couldn’t go grocery shopping. The pain was constant and to top it off, I developed arthritis in my hips. With pain medication and periodic cortisone injections. I can be human again.

7. In 2001 I slipped at work and hit two tables as I fell. My right arm i flung out to try and catch myself hit a metal table and my spine slammed into a wooden butcher’s block. I tore my right rotator cuff and blew out 2 dice in my neck where i hit the wooden block. I have had 4 operations. 2 spinal and 2 on my shoulder to repair damage. I developed crps in my right arm. And sereve muscle spasms in my back and neck plus chronic pain. I’ve tried injections both epidural and trigger point injections. I’ve done tons of physical therapy. Opioids are my only way to control the pain

8. I suffer daily from chronic pain. Without my pain meds I can’t walk and I’m so miserable I just lay in bed on heating pads or ice just screaming in pain. The pain gets so bad I pray for the Lord to just take me! I suffer from osteoporosis and sciatic nerve damage from waist down and degenerate joint and disc disease also PAD perial artery disease which is extremely painful. I need my meds. I didn’t ask to be this way so don’t treat me like a criminal because I’m not well!!

9. I have been in pain from my days as I have worked all my life got married in January 26/68 had my 1st child that May 20, had 2 more children.70/72 went to work when he was in school and I have had a few operations, back,overies, dropped uterus and a 2nd back last year and r oldest had Colon cancer he passed away 1/25/18 had both eyes done and my back is still hurting me n I can’t wait for you to pass on this one hurting everyday I am 67yrs old n hubby and I stay to r self’s and I need help with my back pain loaded with arthritis, left leg gives out no warning I have a cancer patient and I will be getting a new CT scan for my left lung no more surgeries had enough eyes done to so I can get to the doctor, market, etc and hubby is on his 3rd defrib in 10yrs he can’t drive so I am asking for someone to fix this for me please and thank you for your interest on this one hopefully it will work I tried other pills and don’t work allergies to Morphine,Nsaids and too much Asiprin.upset stomach, runs ear’s Ring so please let this pass ur hurting people who really need their meds I take 14 pills a day Thanks

10. i used over the counter pain meds till i sarted crapping blood. i thought iwas dying from something. doc said i was was using too much and prescribed a better, less physically dammaging alterantive. i have used this alternitive with out for six years without increasing the very low dose i started with. my doc retired and i can not find another that will prescribe the same thing i used for years with no adverse side effects. now , im crapping blood again, when i really need pain relief. p.s. i im a construction worker, every day is very hard. over the counter, and most prescriptions are wrecking my liver. when will i ever get the same care that i benefited so much from?